The latest news from PTC

PTC has been named a 2026 Gallup Exceptional Workplace Award winner. This is the company’s fifth time earning this important recognition, and it reflects the culture we have cultivated by enabling our people do their best work by leading with their Strengths. At PTC, we use Gallup’s CliftonStrengths to build a shared Strengths language that…

According to EURORDIS, the Rare Disease Day 2026 theme, “More than you can imagine”, reminds us that “rare diseases touch more lives, involve more conditions, and require more action than most people realize.”   In recognition of this powerful global campaign, PTC honors the phenylketonuria (PKU) community by amplifying voices from across the globe. Together, we can raise our voices to shed light on the realities of living with…

In rare disease, progress starts with listening. Rare Disease Day is an opportunity to recognize the millions of people worldwide living with rare conditions — and to reflect on what it truly means to support them. At PTC, support and meaningful impact begins by listening to the people who live this reality every day. It’s those who are…

Tiffany, a mother of two who lives with Friedreich’s ataxia (FA), opens up about the challenges of navigating life with a physical disability while embracing her identity as a “whole person” – someone who is more than just her FA diagnoses. In these videos, she highlights the importance of community in overcoming obstacles and finding…

Tracy, who lives with phenylketonuria (PKU), is a professional astrophysicist and works at NASA. In her opinion, living with PKU requires discipline to keep on top of managing the condition. “I often wonder if I didn’t have PKU, if I would be an astrophysicist,” Tracy says. “I know there is that little part of me…

Sarah Chamberlin, the mother of a child with phenylketonuria (PKU) and a passionate advocate, shares her journey of turning a challenging diagnosis into an opportunity to create meaningful change for the PKU community.  By channeling her skills into advocacy, she led the transformation of National PKU News to flok, an organization with the mission to…

Simone was diagnosed with aromatic L-amino acid decarboxylase (AADC) deficiency when he was 12 months old. AADC deficiency is a rare, life-limiting genetic disorder that can cause severe disability from the first months of life and can impact the entire family.  For Simone’s parents, Sabrina and Sebastiano, the path to getting the diagnosis was difficult…

For Sam, publishing his first book was nerve-wracking – it chronicled his Friedreich’s ataxia (FA) diagnosis and was therefore very personal. He wasn’t sure what people would think, but he was pleased with the positive reception of his book. Sam is a passionate writer and has since published five more books. In this video, Sam…

International PKU Day, led by E.S.PKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria), a patient-driven umbrella organization representing PKU organizations across Europe, is on June 28. This year’s theme, Shades of PKU, seeks to highlight the diverse experiences of people living with PKU. The campaign underscores the complex reality of PKU, emphasizing that it’s…

Our employees bring a wealth of perspectives and ideas, driving innovation and fostering more dynamic teams.   To ensure we have a broad range of voices where decisions are made, we encourage all to lead with authenticity and empathy, which allows people to feel comfortable being vulnerable and safe so they can ask questions. We also…