For International Ataxia Awareness Day, we’re honoring the voices of people living with Friedreich’s ataxia (FA) by highlighting a common thread that runs through every story: the power of community.
While each person’s experience with FA is unique, a community can transform isolation into strength. Through resilience, advocacy and storytelling, these individuals show that the FA community is stronger together.
To learn more, check out the stories from the community below and check out background information about FA here: https://www.ptcbio.com/therapeutic-areas/friedreich-ataxia/
Kailey finds strength in the “giant family” of the FA community and admires the community’s resilience. Hear her story: https://www.ptcbio.com/posts/finding-strength-in-the-giant-family-of-the-fa-community/
Alex finds that making friends with others with FA helps him normalize his own experiences, and that “our strength comes from each other.” Read more from Alex: https://www.ptcbio.com/posts/alexs-day-to-day-with-fa/
Tiffany looks to the FA community as a support in overcoming obstacles and finds hope through connections with others. Watch to learn more: https://www.ptcbio.com/posts/looking-for-lifes-small-miracles/
Sam is a passionate writer who feels that sharing your story can make you feel less alone. Hear his story: https://www.ptcbio.com/posts/the-importance-of-sharing-your-story/
Andrea wants others in the FA community to know they are not alone. Read Andrea’s story: https://www.ptcbio.com/posts/andreas-message-to-the-fa-community/