Skip to main content
News, talk and articles

The latest news from PTC

  1. Start the Conversation this International Ataxia Awareness Day

    In honor of International Ataxia Awareness Day (IAAD), recognized on September 25th each year, we are joining forces with the global ataxia community in their efforts to bring awareness to this rare disease. The theme of this year’s day is “Ask Me About Ataxia” – encouraging people to learn more about ataxia by asking questions.…
    Rare Disease Community
    September 19, 2024
    1 minute
    Read More
  2. Success Stories from PTC’s Coaching and Mentoring Center of Excellence

    Coaching and mentoring have become an increasingly important tool for personal and professional growth, positive change and performance. At PTC, we have implemented these development practices, which have proven to be beneficial for both employees and the organization by enhancing career and leadership development and employee satisfaction.  In 2023, PTC launched a formal Coaching and…
    Our Culture
    September 18, 2024
    3 minutes
    Read More
  3. Kailey is Thankful for her FAMily

    Kailey is grateful for the Friedreich ataxia community and strives to raise awareness of FA.
    Rare Disease Community, Rare Journeys
    September 17, 2024
    1 minute
    Read More
  4. Brittany Brings Order to Friedreich Ataxia

    Brittany encourages others with Friedreich ataxia to take their time accepting their diagnosis.
    Rare Disease Community, Rare Journeys
    September 17, 2024
    1 minute
    Read More
  5. Tomáš Shares his Many Passions

    Tomáš wants to remain as independent and active as possible with FA for as long as possible.
    Rare Disease Community, Rare Journeys
    September 17, 2024
    2 minutes
    Read More
  6. PTC Germany: A Decade of Advocacy and Innovation

    PTC Germany: A Decade of Advocacy and Innovation PTC Germany has been a relentless champion for people with rare diseases. Since the office opened in September 2014, the team has made incredible strides in transforming lives through enhanced awareness, patient advocacy and groundbreaking treatments. Most importantly, PTC Germany has given patients a new voice. Through…
    Our Culture
    September 11, 2024
    4 minutes
    Read More
  7. Making Gender Equality a Reality at PTC: Supporting Women

    PTC strives to support women and underrepresented groups by amplifying their voices, advocating for their growth, raising awareness of important topics and providing resources. Advocating for Women in the Rare Disease Community To honor World Duchenne Awareness Day in 2023, we spotlighted inspiring women in the Duchenne community, whether they were a patient, caregiver or…
    Our Culture
    September 5, 2024
    4 minutes
    Read More
  8. Improving the Transition from Pediatric to Adult Care in Duchenne

    PTC research highlights opportunities to improve the transition experience for young adults living with Duchenne In 2023, PTC supported a research project conducted by a patient-focused consultancy Redline Strategic exploring the experience for teenagers, young adults and caregivers living with Duchenne muscular dystrophy (Duchenne) as they transition from pediatric care to adult care. The research…
    Rare Disease Community
    August 29, 2024
    3 minutes
    Read More
  9. Raising Voices for Duchenne

    World Duchenne Awareness Day is on Sept. 7. In honor of this year’s theme, “raise your voice for Duchenne”, we are highlighting remarkable individuals in the Duchenne community who are doing just that: using their voices to raise awareness of Duchenne, advocating for those living with the condition and inspiring the community to join them…
    Rare Disease Community
    August 27, 2024
    2 minutes
    Read More
  10. Checking In with Emerging Leaders at PTC

    The Emerging Leaders program (ELP) at PTC is a six-month, nomination based, global program that was created specifically for individuals at PTC who demonstrate the passion and traits to become successful future leaders. The program was developed with the goal of establishing a healthy range of diversity at the top as these emerging leaders advance.…
    Our Culture
    August 20, 2024
    2 minutes
    Read More