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The latest news from PTC

  1. Kailey is Thankful for her FAMily

    Kailey is grateful for the Friedreich ataxia community and strives to raise awareness of FA.
    Rare Disease Community, Rare Journeys
    September 17, 2024
    1 minute
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  2. Brittany Brings Order to Friedreich Ataxia

    Brittany encourages others with Friedreich ataxia to take their time accepting their diagnosis.
    Rare Disease Community, Rare Journeys
    September 17, 2024
    1 minute
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  3. Tomáš Shares his Many Passions

    Tomáš wants to remain as independent and active as possible with FA for as long as possible.
    Rare Disease Community, Rare Journeys
    September 17, 2024
    2 minutes
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  4. Luke & Elliott: Two Paths to Duchenne

    The bond between Luke and Elliott, who lives with Duchenne, is the foundation for new life paths.
    Rare Disease Community, Rare Journeys
    December 5, 2023
    3 minutes
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  5. Owning Your Rare Disease Story

    Kevin, who lives with PKU, shares his passion for storytelling.
    Rare Disease Community, Rare Journeys
    December 3, 2023
    4 minutes
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  6. Jessica’s Many Crowns and Titles – Including Duchenne Advocate

    Jessica uses her platform and titles, including Mrs. NY International, to advocate for Duchenne.
    Rare Disease Community, Rare Journeys
    November 21, 2023
    3 minutes
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  7. Improving Workplace Outcomes for People With Disabilities

    Felix channels his passion and studies to changing the workplace for people with disabilities.
    Rare Disease Community, Rare Journeys
    November 2, 2023
    2 minutes
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  8. The Rebel in a Wheelchair

    Despite living with SMA, there’s not much that Juan hasn’t already achieved.
    Rare Disease Community, Rare Journeys
    October 23, 2023
    3 minutes
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  9. The Primary Catalyst

    In any conversation about patient advocacy for Duchenne, Pat Furlong’s name is bound to come up.
    Rare Disease Community, Rare Journeys
    September 25, 2023
    3 minutes
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  10. Luke’s Passion for Wheelchair Football

    PTC employee and wheelchair football player Luke shares why he is passionate about the sport.
    Rare Disease Community, Rare Journeys
    September 19, 2023
    1 minute
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