The latest news from PTC

Emma shares her story about living with PKU and her advice for others.

Pam and her daughter, Kelsey, live with phenylketonuria (PKU), a rare, inherited metabolic disease which affects the brain.

Laci shares what it was like to be a caregiver at a young age for someone with Huntington’s disease.

Londen shares her story as the mother & caregiver of Autumn, who has juvenile Huntington’s disease.

Kailey is grateful for the Friedreich's ataxia community and strives to raise awareness of FA.

Brittany encourages others with Friedreich's ataxia to take their time accepting their diagnosis.

Tomáš wants to remain as independent and active as possible with FA for as long as possible.

The bond between Luke and Elliott, who lives with Duchenne, is the foundation for new life paths.

Kevin, who lives with PKU, shares his passion for storytelling.

Jessica uses her platform and titles, including Mrs. NY International, to advocate for Duchenne.