The latest news from PTC

Alex, who lives with Friedreich’s ataxia (FA), encourages others in the FA community to get involved.

Evonne feels empowered by being an ambassador for Huntington's disease. 

Kurt shares his dedication to storytelling, encouraging others to find strength in their PKU journeys. 

Andrea lives with Friedreich’s ataxia (FA), a rare, genetic, and progressive neuromuscular disease that mainly affects the central nervous system and the heart. She has shared her story with PTC to help spread awareness about FA.  “My name is Andrea Garcia, and I was diagnosed with FA when I was five years old.  Around the…

Emma shares her story about living with PKU and her advice for others.

Pam and her daughter, Kelsey, live with phenylketonuria (PKU), a rare, inherited metabolic disease which affects the brain.

Laci shares what it was like to be a caregiver at a young age for someone with Huntington’s disease.

Londen shares her story as the mother & caregiver of Autumn, who has juvenile Huntington’s disease.

Kailey is grateful for the Friedreich's ataxia community and strives to raise awareness of FA.

Brittany encourages others with Friedreich's ataxia to take their time accepting their diagnosis.