News, talk and articles
The latest news from PTC
-
Kailey is Thankful for her FAMily
Kailey is grateful for the Friedreich ataxia community and strives to raise awareness of FA. -
Brittany Brings Order to Friedreich Ataxia
Brittany encourages others with Friedreich ataxia to take their time accepting their diagnosis. -
Tomáš Shares his Many Passions
Tomáš wants to remain as independent and active as possible with FA for as long as possible. -
Luke & Elliott: Two Paths to Duchenne
The bond between Luke and Elliott, who lives with Duchenne, is the foundation for new life paths. -
Owning Your Rare Disease Story
Kevin, who lives with PKU, shares his passion for storytelling. -
Jessica’s Many Crowns and Titles – Including Duchenne Advocate
Jessica uses her platform and titles, including Mrs. NY International, to advocate for Duchenne. -
Improving Workplace Outcomes for People With Disabilities
Felix channels his passion and studies to changing the workplace for people with disabilities. -
The Rebel in a Wheelchair
Despite living with SMA, there’s not much that Juan hasn’t already achieved. -
The Primary Catalyst
In any conversation about patient advocacy for Duchenne, Pat Furlong’s name is bound to come up. -
Luke’s Passion for Wheelchair Football
PTC employee and wheelchair football player Luke shares why he is passionate about the sport.