Kailey, who lives in Louisiana with her boyfriend and two dogs, was diagnosed with Friedreich’s ataxia (FA) after years of concerning symptoms and multiple kinds of testing. She describes FA as feeling like your brain and body aren’t communicating. Despite the challenges of living with FA, she finds strength in the FA community and admires the community’s resilience; she also appreciates coming together so they can accept the realities of living with FA together. In these videos, she shares more about her FA journey, the common symptoms of FA and shares encouragement for others in the FA community.