Skip to main content
News, talk and articles

The latest news from PTC

  1. Jenna’s Huntington’s Disease Story

    In this issue of Patient Voices, Jenna shares her journey with HD.
    Rare Disease Community, Rare Journeys
    May 8, 2023
    reading time 2 minutes
    Read More
  2. Meet Shalom: Writer, Advocate and Artist with Duchenne

    Shalom views Duchenne as a companion and source of inner strength.
    Rare Disease Community, Rare Journeys
    April 25, 2023
    reading time 2 minutes
    Read More
  3. Where Experience Can Make a Difference

    From global fellowship program to full-time at PTC: Luke's story.
    Rare Disease Community, Rare Journeys
    April 19, 2023
    reading time 2 minutes
    Read More
  4. International Women’s Day: Interview with Isabella Prada

    Sorority and team spirit Today, International Women’s Day, we’re sharing the story of a PTC employee that we are proud to have as part of our team: Isabella Prada, Executive Director, Associate General Counsel & Compliance – LATAM and Data Protection Officer LATAM. Isabella has been with us for four years, leading a department made…
    Our Culture
    March 8, 2023
    reading time 2 minutes
    Read More
  5. Duchenne & Sports: A Winning Combination

    Alexander & Tim share the positive effects of sports for the Duchenne community.
    Rare Disease Community, Rare Journeys
    March 8, 2023
    reading time 3 minutes
    Read More
  6. International Women’s Day 2023: Embrace Equity

    March 8 is International Women’s Day (IWD), a global celebration of the social, economic, cultural and political achievements of women around the world. IWD is also call to action for accelerating women’s equality; Embrace Equity is the 2023 theme. Per IWD: The aim of the IWD 2023 #EmbraceEquity campaign theme is to get the world…
    Our Culture
    March 7, 2023
    reading time 3 minutes
    Read More
  7. Meet Claudia: A Mompreneur and Duchenne Advocate

    Learn more about Claudia, a mother, caregiver, social media content creator & Duchenne advocate.
    Rare Disease Community, Rare Journeys
    February 21, 2023
    reading time 3 minutes
    Read More
  8. A Duchenne Dad and Esports Motivator

    Martin supports his son, who lives with Duchenne, and his passion for online gaming.
    Rare Disease Community, Rare Journeys
    February 2, 2023
    reading time 4 minutes
    Read More
  9. Lila Empowers Others to Embrace Who They Are

    Disability activist and performer living with Duchenne, Lila, encourages people to be themselves.
    Rare Disease Community, Rare Journeys
    December 20, 2022
    reading time 2 minutes
    Read More
  10. PTC Planting Trees for the Future

    Last week in Switzerland, PTC colleagues teamed up to plant trees in an effort to make an environmental impact. In partnership with OneTree Planted and Almighty Tree this year, 100 Oak trees were planted to help combat climate change and prevent biodiversity loss for generations to come. Tree planting is critical to reforestation and afforestation…
    Our Culture, Responsibility
    November 7, 2022
    reading time 1 minute
    Read More