News, talk and articles
The latest news from PTC
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A Pioneering Advocate
Kelly Heger became a nurse after her daughter, Jillian, was diagnosed with AADC deficiency. -
Jenna’s Huntington’s Disease Story
In this issue of Patient Voices, Jenna shares her journey with HD. -
Meet Shalom: Writer, Advocate and Artist with Duchenne
Shalom views Duchenne as a companion and source of inner strength. -
Where Experience Can Make a Difference
From global fellowship program to full-time at PTC: Luke's story. -
International Women’s Day: Interview with Isabella Prada
Sorority and team spirit Today, International Women’s Day, we’re sharing the story of a PTC employee that we are proud to have as part of our team: Isabella Prada, Executive Director, Associate General Counsel & Compliance – LATAM and Data Protection Officer LATAM. Isabella has been with us for four years, leading a department made… -
Duchenne & Sports: A Winning Combination
Alexander & Tim share the positive effects of sports for the Duchenne community. -
International Women’s Day 2023: Embrace Equity
March 8 is International Women’s Day (IWD), a global celebration of the social, economic, cultural and political achievements of women around the world. IWD is also call to action for accelerating women’s equality; Embrace Equity is the 2023 theme. Per IWD: The aim of the IWD 2023 #EmbraceEquity campaign theme is to get the world… -
Meet Claudia: A Mompreneur and Duchenne Advocate
Learn more about Claudia, a mother, caregiver, social media content creator & Duchenne advocate. -
A Duchenne Dad and Esports Motivator
Martin supports his son, who lives with Duchenne, and his passion for online gaming. -
Lila Empowers Others to Embrace Who They Are
Disability activist and performer living with Duchenne, Lila, encourages people to be themselves.