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The latest news from PTC

  1. Júlio Engineers a Successful Future

    Júlio is a determined man living with Duchenne who is studying electrical engineering.
    Rare Disease Community, Rare Journeys
    April 14, 2021
    reading time 1 minute
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  2. Lessons Learned from My Sibling with Duchenne

    Emily shares the lessons learned from her brother, who lives with Duchenne.
    Rare Disease Community, Rare Journeys
    April 9, 2021
    reading time 2 minutes
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  3. Striving to Change Perceptions

    Tiffany, who's son has Duchenne, motivates others to focus on abilities rather than disabilities.
    Rare Disease Community, Rare Journeys
    March 16, 2021
    reading time 1 minute
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  4. Benni’s Mission to Protect the Environment

    Benni is determined to educate others on the importance of environmental protection.
    Rare Disease Community, Rare Journeys
    March 2, 2021
    reading time 2 minutes
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  5. Keeping Community Connections Strong – #DuchenneCan in Hungary

    With the ongoing coronavirus pandemic keeping us physically apart, the Healing Goodwill Foundation – Duchenne Hungary began to find new ways to connect with their local Duchenne community and continue to provide valuable support. By strengthening its virtual presence, the Foundation has been able to stay in contact with affected patients and their families through…
    Rare Disease Community
    February 9, 2021
    reading time 1 minute
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  6. Supporting Families Affected by Duchenne

    Christopher helps families experiencing the challenge of receiving a Duchenne diagnosis.
    Rare Disease Community, Rare Journeys
    January 26, 2021
    reading time 1 minute
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  7. Duchenne Diagnosis and Timely Care in Saudi Arabia – #DuchenneCan

    Despite being the 12th largest country in the world, Saudi Arabia lacks experienced physicians and medical centers that specialize in the diagnosis and treatment of certain rare diseases. Access is especially challenging in remote areas of the country, leading to inaccurate or delayed diagnosis of patients suffering from neuromuscular disorders, including Duchenne muscular dystrophy. Using…
    Rare Disease Community
    January 20, 2021
    reading time 1 minute
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  8. Raising Awareness of Duchenne in Ukraine

    Marharyta has worked tirelessly to improve her son’s life and raise awareness of Duchenne.
    Rare Disease Community, Rare Journeys
    January 16, 2021
    reading time 1 minute
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  9. Breaking Down Physical and Digital Barriers

    Björn doesn’t let his Duchenne diagnosis stop him from empowering others like him.
    Rare Disease Community, Rare Journeys
    January 12, 2021
    reading time 2 minutes
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