The latest news from PTC

With the ongoing coronavirus pandemic keeping us physically apart, the Healing Goodwill Foundation – Duchenne Hungary began to find new ways to connect with their local Duchenne community and continue to provide valuable support. By strengthening its virtual presence, the Foundation has been able to stay in contact with affected patients and their families through…

Christopher helps families experiencing the challenge of receiving a Duchenne diagnosis.

Despite being the 12th largest country in the world, Saudi Arabia lacks experienced physicians and medical centers that specialize in the diagnosis and treatment of certain rare diseases. Access is especially challenging in remote areas of the country, leading to inaccurate or delayed diagnosis of patients suffering from neuromuscular disorders, including Duchenne muscular dystrophy. Using…

Marharyta has worked tirelessly to improve her son’s life and raise awareness of Duchenne.

Björn doesn’t let his Duchenne diagnosis stop him from empowering others like him.