The latest news from PTC

Meet Gabriela, a young and talented author of a children’s book, "Timothy’s Magic Wheelchair".

Hulda created Dancing for Duchenne to encourage positivity through hard times.

Laura helps others navigate life with Duchenne and live every day like the best day ever.

Kelly Heger went back to school and trained as a nurse after her daughter Jillian was diagnosed with AADC deficiency (AADCd), a rare fatal pediatric disorder, over 26 years ago. Kelly was determined to understand the complicated medical language used by her daughter’s doctors and to play a pivotal role in the round-the-clock medical care…

Guðjón use his experience living with DMD to advance understanding of genetic disorders.

Andrea combines his passion for graphic design with his desire to help those living with Duchenne.

Elijah doesn't let Duchenne hold him back.

Aida and her husband founded the Lebanese Association for Neuromuscular Diseases (L.A.N.D.) in 2011, following their son Wafik’s diagnosis with Duchenne muscular dystrophy. At that time, they encountered a lack of information and support for their family and others living with neuromuscular diseases in Lebanon. They realized there was a need for a community organization…

ASCADIM provides physical, psychological, and social care to people with muscular dystrophies in Southern Brazil. The organization was created based on insights from parents on the despair they felt following diagnosis and their desire for more and trusted information. Via ASCADIM, patients and their families can access vital support, guidance, and free physical therapy –…

Sebastien is determined to improve accessibility for people who live with a disability.