The latest news from PTC

Pam and her daughter, Kelsey, live with phenylketonuria (PKU), a rare, inherited metabolic disease which affects the brain.

As November ushers in a season of gratitude, it also brings with it National Caregivers Month – a time to recognize and celebrate the unsung heroes who dedicate their lives to caring for others, particularly those in the rare disease community. These individuals, often family members or close friends, play an invaluable role in supporting…

We are thrilled to share that PTC was selected as winner of the BioTech AI Solution of the Year award from the BioTech Breakthrough Awards. The BioTech Breakthrough Awards program “aims to perform the most comprehensive evaluation of life sciences and biotechnology tools, services and companies today, with nominations coming in from the best and brightest biotechnology innovators…

At the European Diversity Awards this November, PTC was honored to receive the lululemon Community Project of the Year Award for its outstanding contribution to diversity and inclusion. The European Diversity Awards is Europe’s most prestigious and widely respected diversity event, recognizing and celebrating organizations and individuals that have shown innovation, creativity and commitment to…

Laci shares what it was like to be a caregiver at a young age for someone with Huntington’s disease.

Londen shares her story as the mother & caregiver of Autumn, who has juvenile Huntington’s disease.

In honor of International Ataxia Awareness Day (IAAD), recognized on September 25th each year, we are joining forces with the global ataxia community in their efforts to bring awareness to this rare disease. The theme of this year’s day is “Ask Me About Ataxia” – encouraging people to learn more about ataxia by asking questions.…

Coaching and mentoring have become an increasingly important tool for personal and professional growth, positive change and performance. At PTC, we have implemented these development practices, which have proven to be beneficial for both employees and the organization by enhancing career and leadership development and employee satisfaction.  In 2023, PTC launched a formal Coaching and…

Kailey is grateful for the Friedreich ataxia community and strives to raise awareness of FA.

Brittany encourages others with Friedreich ataxia to take their time accepting their diagnosis.