International PKU Day, led by the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (E.S.PKU) and acknowledged on June 28 each year, is a moment to pause and recognize what the PKU community lives every day: the constant planning, the lifelong dietary boundaries and the often unseen cognitive and emotional weight that can come with managing phenylalanine (phe) levels. It’s also a day to honor the resilience of individuals and families who navigate PKU with strength and determination.
At PTC, we believe recognition must come with action. This year, our leaders are sharing their personal Pledge for PKU: a commitment to listen more deeply to lived experience, to keep learning from the community and to continue pushing for meaningful progress in innovation, education and access to care around the world.
Their words reflect a shared promise: to show up consistently, advocate boldly and help build a future where living with PKU is no longer a limitation.
Below, read their pledges and join us in reaffirming our commitment to the PKU community, today, and every day.