The latest news from PTC

Navigating a rare disease diagnosis and treatment can be time consuming and overwhelming, from getting a prescription, working through insurance coverage and getting the medication on time. For people living with rare diseases taking a PTC treatment, PTC Cares is here to help. PTC Cares helps take care of treatment coordination, so patients with a rare disease…

It is fair to say that Jessica Fabus Cheng is a very impressive woman who carries many crowns and titles including surgical nurse, sportswoman, mother, Duchenne carrier and cancer survivor, and Mrs. New York International 2023. She is also a former figure skater and in 2021 was listed as one of Taekwondo Life Magazine’s ‘10…

Navigating a rare disease diagnosis and treatment can be overwhelming, from getting a prescription, working through insurance coverage and getting the medication on time. For people living with rare diseases taking a PTC treatment, PTC Cares is here to help. PTC Cares helps take care of treatment coordination, so patients with a rare disease and their families…

The PTC team in Brazil recently won three awards for their creative and impactful projects highlighting the rare disease community. First Up: The documentary series, “Living is Rare” (“Viver é Raro”) won the SABRE América Latina 2023 Award. The series was recognized with the award in the Public Education category. The world’s leading award in Public Relations, SABRE celebrates creative…

Navigating a rare disease diagnosis and treatment can be overwhelming, from getting a prescription, working through insurance coverage and getting the medication on time. For people living with rare diseases taking a PTC treatment, PTC Cares is here to help. PTC Cares helps take care of treatment coordination, so patients with a rare disease and…

PTC is a global biopharmaceutical company with presence in Europe, Middle East and Africa (EMEA), and has initiated a new ED&I program to further strengthen its values and encourage positive progress globally. How does a globally expanding company bring such a melting pot of people together, ensuring true inclusivity? The teams engaged with the workforce…

This October, for the second year in a row our PTC colleagues in Switzerland dedicated time to give back to the environment. The team partnered again with Almighty Tree and planted another 100 ‘more resistant’ trees. Unfortunately, the planting location had been heavily impacted by bark beetle infestations which has a direct link to climate…

Felix Wu was four when he was diagnosed with Duchenne muscular dystrophy. Throughout his school career, he saw how Duchenne affected him, and how inclusive (or not) people could be. “People with disabilities have to think about so much more when we plan anything, just in terms of access,” Felix said. “At school, for example,…

The Patient Engagement (PE) team at PTC is passionate about education and support of a family’s rare disease journey, and this commitment includes support for patients and their families in the Spanish-speaking community. The team began meeting with the Spanish-speaking community in Puerto Rico more than five years ago, and realized there were minimal resources…

Congratulations to France, the 2023 FIPFA Powerchair Football World Cup champions, who defeated England in a thrilling Final complete with a shootout tiebreaker! Placing in 3rd after England was the USA. Last week brought great excitement and opportunity to showcase the true meaning of inclusion at Quaycentre Sydney Olympic Park in Australia.  In one media…