News, talk and articles
The latest news from PTC
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Supporting the 2022 IWAS Powerchair Hockey World Cup!
At PTC Therapeutics, we continue to be inspired by the communities we serve. We are proud to be sponsoring this year’s IWAS Powerchair Hockey World Cup, which is taking place from the 9th – 14th August 2022, in Switzerland. The IWAS Powerchair Hockey World Cup is the most important international competition for powerchair hockey athletes.… -
UK Caregiver of the Year Campaigns for Disability and Rare Disease Rights
Shelley received the Caregiver of the Year 2022 award from the charity Muscular Dystrophy UK. -
Feriel Inspires Other Women with Duchenne
Feriel's Duchenne diagnosis hasn’t stopped her from having a positive outlook. -
Philip’s Journey to Gold
Philip is the first person ever with Duchenne to win a gold medal in any event at the Paralympics. -
An Aspiring Screenwriter Living with Duchenne
Lizanne wants to increase recognition for disabled people in the acting and film industries. -
Gabriela Inspires Children to Embrace Their Differences
Meet Gabriela, a young and talented author of a children’s book, "Timothy’s Magic Wheelchair". -
Dancing for Duchenne Brings Joy to the Community
Hulda created Dancing for Duchenne to encourage positivity through hard times. -
Laura Channels Challenges Into Positivity
Laura helps others navigate life with Duchenne and live every day like the best day ever. -
Living with AADC Deficiency – Meet the Heger Family
Kelly Heger went back to school and trained as a nurse after her daughter Jillian was diagnosed with AADC deficiency (AADCd), a rare fatal pediatric disorder, over 26 years ago. Kelly was determined to understand the complicated medical language used by her daughter’s doctors and to play a pivotal role in the round-the-clock medical care… -
Guðjón Contributes to Scientific Research
Guðjón use his experience living with DMD to advance understanding of genetic disorders.