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Patient Resources

Welcome to Insightful Moments™

Insightful Moments is a community education series of programs and materials created to support patients with rare disease and their families.

Insightful Moments My VIBE™

Listen to patients and their families as they share their unique experiences living with a rare disease – from diagnosis to overcoming challenges and building a supportive community.

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Insightful Moments Educational Series Materials

Choose your educational series and view PDFs, videos, and webinar recordings to help you along your journey.

Below, you will find pdf roadmaps to help you along your journey. Click the tile to open a single pdf, or check the box to download multiple pdfs at one time. Videos will open in a video player, so you can view them directly in your browser. You can navigate between the Education Series’ by clicking the category button.

We are here to help! Email us at InsightfulMoments@ptcbio.com, or call 1-833-PTC-HOPE, 1-833-PTC-VIDA (Spanish)

Para obtener más información sobre Momentos de Claridad, por favor visite https://ptcmomentosdeclaridad.com o comuníquese con Enlace de Pacientes.

All Educational Series Materials

  1. Insightful Moments - Holistic Inspirations Webinar Recording
    Holistic inspirations (webinar recording)
    Holistic Inspirations
  2. Insightful Moments - Holistic Impressions - Personal Space
    Personal space
    Holistic Inspirations
  3. Insightful Moments Video
    Personal space (video)
    Holistic Inspirations
  4. Insightful Moments - Holistic Impressions - Personal Connection
    Personal connection
    Holistic Inspirations
  5. Insightful Moments Video
    Personal connection (video)
    Holistic Inspirations
  6. Insightful Moments - Holistic Impressions - Personal Preference
    Personal preference
    Holistic Inspirations
  7. Insightful Moments Video
    Personal preference (video)
    Holistic Inspirations
We are here to help

Reach Out!

To learn more about Insightful Moments please contact us at InsightfulMoments@ptcbio.com
or call 1-833-PTC-HOPE, 1-833-PTC-VIDA (Spanish).