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Patient Resources

Welcome to Insightful Moments™

Insightful Moments is a community education series of programs and materials created to support patients with rare disease and their families.

Insightful Moments My VIBE™

Listen to patients and their families as they share their unique experiences living with a rare disease – from diagnosis to overcoming challenges and building a supportive community.

Click here to listen to the podcast
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Insightful Moments Educational Series Materials

Choose your educational series and view PDFs, videos, and webinar recordings to help you along your journey.

Below, you will find pdf roadmaps to help you along your journey. Click the tile to open a single pdf, or check the box to download multiple pdfs at one time. Videos will open in a video player, so you can view them directly in your browser. You can navigate between the Education Series’ by clicking the category button.

We are here to help! Email us at InsightfulMoments@ptcbio.com, or call 1-833-PTC-HOPE, 1-833-PTC-VIDA (Spanish)

Para obtener más información sobre Momentos de Claridad, por favor visite https://ptcmomentosdeclaridad.com o comuníquese con Enlace de Pacientes.

All Educational Series Materials

  1. New
    Understanding your prescription
    Drug Discovery and Development
  2. Insightful Moments - Drug Discovery and Development - Understanding the FDA Approval Process for Gene Therapies
    Understanding the FDA approval process for gene therapies
    Drug Discovery and Development
  3. Insightful Moments - Drug Discovery and Development - Discovery Development and Regulatory
    Discovery, development & regulatory
    Drug Discovery and Development
  4. Insightful Moments Video
    Drug discovery (video)
    Drug Discovery and Development
  5. Insightful Moments - Drug Discovery and Development - Manufacturing and Commercialization
    Manufacturing & commercialization
    Drug Discovery and Development
  6. Insightful Moments Video
    Drug manufacturing (video)
    Drug Discovery and Development
  7. Insightful Moments Video
    Drug commercialization (video)
    Drug Discovery and Development
We are here to help

Reach Out!

To learn more about Insightful Moments please contact us at InsightfulMoments@ptcbio.com
or call 1-833-PTC-HOPE, 1-833-PTC-VIDA (Spanish).