Sarah Chamberlin, the mother of a child with phenylketonuria (PKU) and a passionate advocate, shares her journey of turning a challenging diagnosis into an opportunity to create meaningful change for the PKU community.
By channeling her skills into advocacy, she led the transformation of National PKU News to flok, an organization with the mission to rally the inherited metabolic disorder community to continuously improve care and accelerate scientific progress.
In this video, Sarah reflects on the emotional journey of receiving her daughter’s PKU diagnosis, and the strength and resilience of the PKU community.