For Sam, publishing his first book was nerve-wracking – it chronicled his Friedreich’s ataxia (FA) diagnosis and was therefore very personal. He wasn’t sure what people would think, but he was pleased with the positive reception of his book.

Sam is a passionate writer and has since published five more books. In this video, Sam shares how his life changed after his diagnosis, what it was like to publish a book about his diagnosis journey, and the importance of sharing your story – along with his message for the FA community.