Evonne was motivated to undergo genetic testing for Huntington’s disease (HD) after her father’s diagnosis, seeking to avoid the struggles he faced in his HD journey. Her decision was influenced by attending her first HD conference, ultimately confirming her gene-positive status in November 2018. Evonne’s HD advocacy work aims to inspire hope and resilience, emphasizing that individuals are more than their illness. By sharing her story, she hopes to foster a sense of community and empowerment, encouraging others to take control of their narrative and find strength in solidarity.
Listen to hear more about Evonne’s HD story below: