Every year, the rare disease community comes together to mark their collective journey with a day for recognition, sharing and reflection on the last day of February, Rare Disease Day. PTC is honored to observe this awareness day in unity with our rare disease community patients, caregivers and advocacy partners.
Our SVP, Corporate & Patient Relations Mary Frances Harmon explains our legacy of honoring this important event. She also examines where the global pandemic has prompted innovations in technology for serving patients and advancing therapies for rare disorders.
Watch her vlog.