This February, PTC celebrated Rare Disease Day on a global scale, with employee participation in disease and patient awareness, as well as displays of support for the rare disease community we serve. These images demonstrate our ongoing commitment to bringing more of life’s precious moments to patients with rare diseases and their loved ones.
From Ireland to Argentina and beyond, our passionate team rallied to support rare disease patients on this international rare disease awareness day. Activities ranged from scientific learning, to finger painting, to petitioning federal government officials and more. At our corporate headquarters in South Plainfield, New Jersey, aromatic L-amino acid decarboxylase (AADC) deficiency caregivers Kelly and Brian Heger spoke with PTC Executive Director, Global Patient Advocacy Karen Galambos about their experience caring for 23 year-old Jillian Heger, who was only the fourth child diagnosed with this rare disease that affects the nervous system.
Rare Disease Day 2020 was an emotional experience felt by many at PTC Therapeutics. We invite you to enjoy our selected photos from this amazing and heartening worldwide event.