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For L.A.N.D., Community CAN Feel Like Family – #DuchenneCan

September 16, 2021

  1. For L.A.N.D., Community CAN Feel Like Family – #DuchenneCan

    “L.A.N.D. is more than an organization, it’s like a family. We support each other during challenging times and we celebrate together our victories.”  ~ Founder of the Lebanese Association for Neuromuscular Diseases, Aida Aida and her husband founded the Lebanese Association for Neuromuscular Diseases (L.A.N.D.) in 2011, following their son Wafik’s diagnosis with Duchenne muscular dystrophy.…

  2. Adult Life and Duchenne Podcast – #DuchenneCan

    In this episode, we meet three fantastic, young men who live with Duchenne muscular dystrophy, and who, by following their interests, have developed exciting lives and careers. Björn Jönsson is self-employed with a strong commitment to the Swedish Foundation for Muscular Dystrophy Research, among other causes. He also works with gaming development under the motto…

  3. STRIVE: Structuring the Clinic for Basic Care at ASCADIM

    ASCADIM provides physical, psychological, and social care to people with muscular dystrophies in Southern Brazil. The organization was created based on insights from parents on the despair they felt following diagnosis and their desire for more and trusted information. Via ASCADIM, patients and their families can access vital support, guidance, and free physical therapy –…

  4. People with Special Needs CAN Travel – #DuchenneCan

    Sebastien is the founder of Handiscover – an online hub for booking accessible travel accommodations. He’s passionate about travel and has lived all over the world. He was determined that he’d keep his travel habits once he had children. However, at four years-old, his son Teo was diagnosed with Duchenne muscular dystrophy, and Sebastien soon…

  5. Inspiring “People of Determination” – #DuchenneCan

    In the United Arab Emirates (UAE), people with special needs and disabilities are considered ”people of determination.” This designation is used in recognition of their achievements in different fields. Abdulla – who is 37 years old and living with Duchenne in the UAE – is one such incredible person who demonstrates determination in all parts…

  6. Play the Virtual Escape Game: Mission Duchenne™

    PTC presents an interactive, family-friendly event for escape game enthusiasts of all ages. Mission Duchenne™: A Virtual Escape game is intended to be a fun and empowering virtual game experience for families. The game content includes information about Duchenne muscular dystrophy. The game can be played as many times as you like. We invite parents…

  7. Pedro CAN Live Life to the Fullest – #DuchenneCan

    Pedro is from Campo Grande, Brazil and is living with Duchenne muscular dystrophy (DMD). He has many passions and interests that keep him energetic and happy. His love of writing has led him to a career in journalism, and he has even published two poetry books. Singing and composing are core passions and he has…

  8. Patrick CAN Realize His Dreams – #DuchenneCan

    Patrick – a.k.a. “Tick” – from São Paulo, Brazil, loves music and enjoys performing on stage. He is also living with Duchenne muscular dystrophy – but that does not define him. Instead, Tick is defined by his personality and his dreams. Watch the video to learn about Tick and how he is making his dreams…

  9. Amazon Duchenne Community CAN Count on Leandro – #DuchenneCan

    At PTC, we’re passionate about supporting those living with rare diseases, even when they live in the most inaccessible parts of the world. Leandro, a PTC colleague in Brazil, plays a key role in educating physicians in remote areas along the Amazon River. He shares information about Duchenne muscular dystrophy (DMD), and has helped make…

  10. Júlio CAN Engineer a Successful Future – #DuchenneCan