PTC opens office in Poland

Each year on September 7, the Duchenne muscular dystrophy (DMD) community unites to raise awareness for the 250,000 people around the world living with DMD. This year was no different, and PTC was proud to join the many supporters and advocates globally on September 7 to show support for the DMD community. This year’s theme…

Benjamin James has a first-class honors Neuroscience degree; he is also a patient advocate and a healthcare communications consultant. When he was four years old, Benjamin was diagnosed with Duchenne, which was managed in his younger years with steroid treatment, exercise and a good physiotherapy routine. As he reached his teenage years, Benjamin began attending…

September 7 is World Duchenne Awareness Day, a global day aimed at raising awareness for those affected by Duchenne and Becker Muscular Dystrophy. This year’s theme is “Women & Duchenne,” and to honor this day, we’re highlighting inspiring women in the Duchenne community. Whether they are a patient, caregiver, or advocate, we celebrate their positivity,…

Those with Duchenne muscular dystrophy may face difficulties such as a limited social life, dependency on home care, and trouble accessing the same opportunities as able-bodied peers. These challenges have been found to have a negative impact on the psychological wellbeing of individuals with Duchenne. Accepting and coping with this kind of neuromuscular disability and…

MDA Hellas is a non-profit organization for people with Neuromuscular Disorders (NMD) in Greece, aiming to improve the quality of life of more than 1,500 affected families. Currently the organization aids in facilitating medical care for those with NMDs, offers psychological and social support, provides equipment and infrastructure to ease everyday routines, and raises public…

When the Associacao Cearense de Distrofias Musculares (ACDM) was founded in 2017 they had a mission; to provide access to therapies and to share parental guidance on muscular dystrophies, including Duchenne, to those affected in the north and northeast regions of Brazil. These regions have a higher prevalence of genetic disorders, and of Duchenne in…

Action Duchenne is a charitable organization with a clear vision: a world where lives are no longer limited by Duchenne. They were founded with three core objectives: (1) develop effective treatments for all by funding research, supporting clinical trials, and campaigning for access; (2) build a community by uniting and supporting families, educating about Duchenne,…

Stephen Keane, Associate Director, Talent Acquisition & Strategy, is about to embark on a six-day, 761-kilometer cycling event to raise money for Muscular Dystrophy Ireland. The challenging cycle will start in Paris and will head south to finish in Nice and will encompass some of the toughest hill climbs in Europe. As an active cyclist,…