Karina

Patient Engagement Liaison

Karina serves as a Patient Engagement Liaison with our North America team. Before joining us, Karina spent nearly a decade at the Muscular Dystrophy Association (MDA), where she spearheaded numerous fundraising and educational initiatives, including directing the MDA Summer Camp. She also collaborated closely with the MDA’s multidisciplinary clinic team to ensure rare disease individuals received optimal care while offering community resources and support.

Karina is personally invested in PTC’s mission to support the rare disease community. In 2014, her daughter underwent a successful multi-organ transplant, an experience that gave her a deeper understanding of the challenges faced by this community. She is passionate about empowering individuals and families to navigate the rare disease journey through education, advocacy, and community support.

Fluent in both English and Spanish, Karina hails from Argentina and relocated to the United States over two decades ago. She currently lives in Boca Raton, FL, with her husband and three daughters.