Skip to main content

PTC Welcomes Alethia Young to the Board of Directors

July 22, 2022

  1. PTC Welcomes Alethia Young to the Board of Directors

    Alethia Young’s journey to become a PTC Board Member began with a reverence for doctors. When she was young, her grandfather had glioblastoma, which resulted in long stints in the hospital. It was during this time that she began to idolize the doctors and nurses caring for her grandfather, and decided she wanted to become…

  2. Enriching the Pipeline of Future Leaders: PTC’s Emerging Leaders Program

    The PTC Emerging Leaders program came to Hege Sollie-Zetlmayer, SVP, Human Resources, in a dream. “I wanted to create a program that was tailor-made for PTC, for the culture we have and want to keep at our company,” said Hege. “The goal was to create a program that would help future PTC leaders address a…

  3. PTC joins Screen4Care to shorten the diagnosis journey for people living with rare diseases

    For too many people living with rare diseases, getting a correct diagnosis is a lengthy process that negatively impacts patients and their family. Through an innovative research collaboration called Screen4Care, PTC will be working alongside 36 international partners from academia, industry, and patient advocacy organizations to find solutions to shorten the path to diagnosis and…

  4. Jon Rey-Hastie: Pushing the limits of Duchenne

    Jon Rey-Hastie is a 41-year-old man living with Duchenne in the UK. Looking at his life achievements, he exemplifies what people with Duchenne CAN achieve. Jon is the Co-founder of Pathfinders Neuromuscular Alliance, has a Ph.D. in Government, and lives independently with his husband. An academic overachiever, Jon completed his Ph.D. in Government at the…

  5. Supporting the 2022 IWAS Powerchair Hockey World Cup!

    At PTC Therapeutics, we continue to be inspired by the communities we serve. We are proud to be sponsoring this year’s IWAS Powerchair Hockey World Cup, which is taking place from the 9th – 14th August 2022, in Switzerland. The IWAS Powerchair Hockey World Cup is the most important international competition for powerchair hockey athletes.…

  6. Caregiver of the Year in UK CAN-paining for disability and rare disease rights

    Shelley Simmonds is a mother and carer who has used her personal experiences to campaign for better resources and care for those in the Duchenne, rare disease and disability communities. As a mother of two from Essex in the UK, Shelley experienced the effects of Duchenne firsthand when her son, Fraser, was diagnosed with the…

  7. Feriel CAN inspire other women with Duchenne

    Feriel Chebba is a 30-year-old woman who is living with Duchenne in France. Diagnosed at 6 years old following a muscle biopsy, Ferial has used a wheelchair since she was 11 years old. But her diagnosis hasn’t stopped her from having a positive outlook and living in the moment. After primary school, Feriel attended college…

  8. Creating a Safe and Supportive Space: Meet the BEC and LGBTQ+ Employee Resource Group Leaders

    The creation of the Employee Resource Groups (ERGs) was driven by PTC’s goals to enhance the employee experience, empower our employees to make a difference in their communities, and embrace our differences that make us unique. The ERGs give our employees a safe space to discuss important topics and celebrate culture. For the month of…

  9. PTC Issues 2021 Corporate Sustainability Report

    We recently issued our 2021 Corporate Sustainability Report (PDF), outlining our efforts and impact in key areas throughout 2021. PTC’s commitment to corporate responsibility focuses on five areas: our patients, our people, our community, our values, and our environment. As a growing, global company with a footprint in more than 50 countries, our mission remains…

  10. HD Awareness Month: Ashley’s Caregiver Perspective

    May is Huntington’s Disease Awareness Month, and we caught up with Ashley Clarke, an HD caregiver from Northern Ireland, on what this month means to her, how we can best honor HD Awareness Month and her advice for others who are affected by this disease. PTC: What does HD Awareness Month mean to you? Ashley:…