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Meet Chris Younkin: 2020 Duchenne United Gaming (DUG) Panelist and Gamer

October 5, 2020
  1. Meet Chris Younkin: 2020 Duchenne United Gaming (DUG) Panelist and Gamer

    “I think my favorite aspect of online gaming is that it is great for disabled gamers.” – Chris Younkin, DUG Panelist and Gamer Duchenne United Gaming (DUG) is a Duchenne muscular dystrophy disease awareness initiative brought to you by PTC Therapeutics and CureDuchenne. The October 10 DUG Champion Competition will feature Chris Younkin and four…

  2. Meet Hawken Miller: 2020 Duchenne United Gaming (DUG) Panelist and Gamer

    “My two favorite aspects of online gaming are the comradery with friends no matter where they live, and being competitive where I’m not able to in the physical world.” – Hawken Miller, DUG Panelist and Gamer Duchenne United Gaming (DUG) is a Duchenne muscular dystrophy disease awareness initiative brought to you by PTC Therapeutics and…

  3. Meet James Wood: 2020 Duchenne United Gaming (DUG) Panelist and Gamer

    “(W)e are in no way diminished as humans and should be treated fully equally.” – James Wood, DUG Panelist and Gamer Duchenne United Gaming (DUG) is a Duchenne muscular dystrophy disease awareness initiative brought to you by PTC Therapeutics and CureDuchenne. The October 10 DUG Champion Competition will feature James Wood and four other gamers…

  4. Meet Wil Cook: 2020 Duchenne United Gaming (DUG) Panelist and Gamer

    “For me, it is important to not overthink things and just be thankful to be alive.” – Wil Cook, DUG Panelist and Gamer Duchenne United Gaming (DUG) is a Duchenne muscular dystrophy disease awareness initiative brought to you by PTC Therapeutics and CureDuchenne. The October 10 DUG Champion Competition will feature Wil Cook and four other gamers…

  5. Six Ways to Achieve Work / Life Flexibility and Integration

    As Arianna Huffington pointed out in a recent Forbes interview, the pandemic has combined three of the largest and most important institutions in our lives: work, family, and school. To cope, Arianna suggests making micro-step changes. Not big, but they add up and make life better – and hopefully address issues of burnout. Because there…

  6. STRIVE Awards Sponsor Hope Online

    “For over 30 years, it has been ADM’s mission to improve the quality of life for the people with neuromuscular diseases in Argentina. After winning this year’s STRIVE awards, we are overjoyed to be able to develop an online community which will continue to support and address the needs of the 1,600 Duchenne patients in…

  7. Education for Duchenne Caregivers in Hungary

    “For many parents of Duchenne patients in Hungary, these events provide a trusted environment where they can share their concerns, and experience a few well-needed hours of respite as their child takes part in many fun activities with their peers.” – Dr Gabriella Oberrecht, Chairperson of the Board, Healing Goodwill Foundation – Duchenne Hungary Receiving…

  8. Counseling Duchenne Patients in Russia

    “With so many individuals providing care to their child alone, without professional help, the ‘Not Alone’ initiative, made possible by the STRIVE program, will provide an invaluable support system to families impacted by Duchenne muscular dystrophy.” – Margarita Urmancheeva, President, GAOORDI Due to a lack of funding, only a few specialist care facilities for Duchenne…

  9. PTC Grant Funds Life Science Immersion Program

    “The next young generation can play a pivotal role in supporting the rare disease community. With this year’s STRIVE Award, we can equip students with the essential tools and knowledge needed so they can be young Duchenne ambassadors in their community.” – Richard Horgan, Founder and President, Cure Rare Disease The rarity of diseases such…

  10. Our CEO Has Big Plans

    PTC founder and Chief Executive Officer, Stuart Peltz, Ph.D., was recently the subject of a MassBio profile. When asked about the future of PTC, he had this to say: PTC has been growing rapidly over the last two years and we will continue to grow and expand in the upcoming year. We plan to launch…