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Mother, caregiver and patient advocate at CureDuchenne


Ever since her son, Wil, was diagnosed with a rare form of Duchenne muscular dystrophy at the age of seven, Tiffany has dedicated herself to advocating for those living with Duchenne and raising awareness of the condition. Through her work at CureDuchenne, a non-for-profit organization, Tiffany is helping other families navigate their Duchenne journeys and empowering the community to focus on things they CAN do.

Portrait photo of Tiffany and Wil.