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IWAS Powerchair Hockey Game Schedule

July 29, 2022

  1. IWAS Powerchair Hockey Game Schedule

    Powerchair hockey is a team sport played by athletes who require the use of an electric wheelchair in their day-to-day lives. Athletes have disabilities ranging from Muscular Dystrophy or SMA, to cerebral palsy or severe spinal cord injuries. Learn More about the 2022 IWAS Powerchair Hockey World Cup

  2. PTC Italy supports “SPORT AND DISABILITY… FROM DREAM… TO REALITY!”

    This July, PTC Italy was proud to support an event designed to give families and children with muscular and neuromuscular disabilities the opportunity to learn about wheelchair sport and especially try different types of sports that are accessible to all. The event, titled ”SPORT AND DISABILITY… FROM DREAM… TO REALITY!” was held on 2nd July…

  3. Daniel CAN write, direct, and produce films

    Daniel Castro is a 23-year-old filmmaker from Florida and a recent graduate at Miami Dade College where he studied Film, Television and Digital Production. His family has been Daniel’s biggest supporters, especially his dad Jose. At age 5 Daniel was pre-diagnosed with Duchenne Muscular Dystrophy (DMD). Jose discovered research about the newly available gene sequencing…

  4. PTC joins Screen4Care to shorten the diagnosis journey for people living with rare diseases

    For too many people living with rare diseases, getting a correct diagnosis is a lengthy process that negatively impacts patients and their family. Through an innovative research collaboration called Screen4Care, PTC will be working alongside 36 international partners from academia, industry, and patient advocacy organizations to find solutions to shorten the path to diagnosis and…

  5. Jon Rey-Hastie: Pushing the limits of Duchenne

    Jon Rey-Hastie is a 41-year-old man living with Duchenne in the UK. Looking at his life achievements, he exemplifies what people with Duchenne CAN achieve. Jon is the Co-founder of Pathfinders Neuromuscular Alliance, has a Ph.D. in Government, and lives independently with his husband. An academic overachiever, Jon completed his Ph.D. in Government at the…

  6. Supporting the 2022 IWAS Powerchair Hockey World Cup!

    At PTC Therapeutics, we continue to be inspired by the communities we serve. We are proud to be sponsoring this year’s IWAS Powerchair Hockey World Cup, which is taking place from the 9th – 14th August 2022, in Switzerland. The IWAS Powerchair Hockey World Cup is the most important international competition for powerchair hockey athletes.…

  7. DMD: continuum of disease and importance of continuation of care, relating to Cardiopathology

    Dr. Chet Ridall Villa from Cincinnati Children’s Hospital Medical Center specializes in Cardiomyopathy, Heart Failure, and Transplantation and is particularly passionate for taking care of children and young adults with Duchenne muscular dystrophy (DMD), RASopathies, and those in need of ventricular assist device therapy and heart transplant. Together with Dr. Villa in this episode we…

  8. Caregiver of the Year in UK CAN-paining for disability and rare disease rights

    Shelley Simmonds is a mother and carer who has used her personal experiences to campaign for better resources and care for those in the Duchenne, rare disease and disability communities. As a mother of two from Essex in the UK, Shelley experienced the effects of Duchenne firsthand when her son, Fraser, was diagnosed with the…

  9. DMD: continuum of disease and importance of continuation of care

    This episode is dedicated to discussing Duchenne Muscular Dystrophy (DMD) continuum of disease and importance of continuation of care in Duchenne Muscular Dystrophy (DMD). Hear from our expert guest speaker, Dr. Mayer from Children’s Hospital of Philadelphia (CHOP) about the recommended DMD standard of care guidelines with regards to ongoing patient management and care. Return…

  10. Feriel CAN inspire other women with Duchenne

    Feriel Chebba is a 30-year-old woman who is living with Duchenne in France. Diagnosed at 6 years old following a muscle biopsy, Ferial has used a wheelchair since she was 11 years old. But her diagnosis hasn’t stopped her from having a positive outlook and living in the moment. After primary school, Feriel attended college…