Frank

Vice President, Patient Relations North America

Frank leads the Patient Engagement efforts in North America. His team is currently focused on multiple rare disease communities including Duchenne muscular dystrophy (DMD), phenylketonuria (PKU), Friedreich ataxia (FA), and aromatic L-amino acid decarboxylase (AADC) deficiency, which includes helping to educate the community, and sharing resources to help families advocate for themselves.

He finds it rewarding when a caregiver or patient is empowered through our educational efforts; when they are helped to better understand their disease and learn how to advocate for the best health care options possible. Building relationships with families offers Frank and the PE team the valuable opportunity to listen and learn about what is most important to them. They share insights from these conversations to help incorporate the patient voice into PTC’s development and commercialization efforts.

Frank has his Bachelor of Science in nursing and is a registered nurse (RN). He has been advocating for patients for many years. Frank started with PTC in 2019 and prior to that he held positions at several health care companies with roles focused on patient advocacy, patient access, reimbursement and homecare, in addition to his work as a nurse in hospital settings.