September 7 is World Duchenne Awareness Day, a global day aimed at raising awareness for those affected by Duchenne and Becker Muscular Dystrophy. This year’s theme is “Women & Duchenne,” and to honor this day, we’re highlighting inspiring women in the Duchenne community. Whether they are a patient, caregiver, or advocate, we celebrate their positivity, determination, and contributions to all those affected by this rare disease.
Through her work, she has seen the impact and power of women in the DMD advocacy community. Their openness and passion have allowed Malisa and the PE team the opportunity to understand what gaps exist in the community and therefore what changes need to be made to make a meaningful difference.
In each woman of this community, whether a caregiver, advocate, or patient, Malisa sees resilience and grit. The hardships they have faced have only empowered them to do something about it: not just for their child, but for a community of people that need support, resources, and a helping hand. Malisa is motivated by their determination and collaboration, and is driven to do her part, taking inspiration from an African Proverb: “If you want to go fast, go alone. If you want to go far, go together.”