In this episode, we meet three fantastic, young men who live with Duchenne muscular dystrophy, and who, by following their interests, have developed exciting lives and careers.
Björn Jönsson is self-employed with a strong commitment to the Swedish Foundation for Muscular Dystrophy Research, among other causes. He also works with gaming development under the motto that entertainment should be for everyone.
In Reykjavik, Iceland, Guðjón Reykdal Óskarsson – a researcher in his own therapeutic area of Duchenne – talks about how he came to the conclusion that rare disease research is exactly what he wants to do.
Finally, we also get to meet Benni Over, an ambassador for orangutans who received the Order of Merit from the Ministry of Rhineland-Palatinate, and is raising funds for a “reforestation project” in Indonesia. Benni also wrote a book for children.
This podcast episode was recorded in connection to the 2021 World Duchenne Awareness Day (WDAD) which occurs on September 7 each year.