With the ongoing coronavirus pandemic keeping us physically apart, the Healing Goodwill Foundation – Duchenne Hungary began to find new ways to connect with their local Duchenne community and continue to provide valuable support. By strengthening its virtual presence, the Foundation has been able to stay in contact with affected patients and their families through ongoing telephone calls, emails, social media engagement, and even virtual gaming.
Despite restrictions on gatherings leading to the cancellation of the Foundation’s usual fundraising events, the team recognized the importance of keeping their Duchenne community connected at this increasingly difficult time. They began an ‘online concert series’ as an alternative to the previously planned face-to-face concerts and events. The Foundation posted videos from local performers every few days its Facebook page, providing uplifting content and ensuring that the local Duchenne community CAN remain connected, despite restrictions.
“Many of our local Duchenne families rely on the connections and emotional support that our Foundation provides, so it was vitally important for us to adapt in 2020 to ensure they were still supported virtually.” – Dr. Gabriella Oberrecht, chairwoman of the board, Healing Goodwill Foundation – Duchenne Hungary