In 2019, we launched PRIORITY, a global innovative research funding program to support pioneering clinical research initiatives that address the unmet medical needs of patients with the rare genetic disorder Duchenne muscular dystrophy. The goal is to advance the diagnosis and care of patients and support unique research programs that are focused on increasing the number infants who are screened for Duchenne.
Last year, three projects were awarded funding from the PRIORITY program, including `Epione project – for early diagnosis of neuromuscular deficits` – which is led by the Italian Society of Pediatric Doctors (SIMPE), a scientific society founded in 2013. Funds will be used to develop a software system connecting pediatricians and primary caregivers across Italy to facilitate two-way communication and information sharing about a child’s development and progress.
Watch the video to learn more about PRIORITY and all three 2019 recipients.