Shelley Simmonds is a mother, passionate advocate, and award-winning carer from the UK. Shelley’s son, Fraser, was diagnosed with Duchenne when he was just a year old. Despite her son’s diagnosis, Shelley didn’t want her to son to grow up feeling different, instead her and her family have continued to take things in their stride and face any challenges head on.
Shelley’s commitment and passion for her son and others in the rare disease and disability communities is reflected in her advocacy work which has earned her Muscular Dystrophy UK’s Caregiver of the Year 2022. Through her work she advocates and campaigns for accessibility, inclusion, independence, equality, and patient voice.