Paula

Patient Engagement Liaison

Paula has amassed a 30-year career in health care services helping families with rare disease, where her focus has been in neuromuscular disease. Before joining PTC, she spent 26 years in patient services at the Muscular Dystrophy Association (MDA).

Her current role at PTC in Patient Engagement enables her to ensure families have a personal connection with PTC and a go-to person who can provide education and support. It is important for families to know that we are here to share their journey, and that they are the true center of PTC’s mission. Paula strives for families to understand that PTC is personally invested in them; that she will walk with them side-by-side to ensure they remain the focus of all that we do.

Paula’s greatest career highlight has been to see firsthand how far research has come – from identifying genes to developing treatments for neuromuscular and rare disease. Also, as a summer camp director for children with neuromuscular disease, she has enjoyed watching young campers grow into adulthood and fulfill their dreams. Knowing families across decades gives Paula personal joy – she is often considered a part of their families. Her favorite nickname is “camp mom.”