PTC Therapeutics’ STRIVE awards program seeks to provide monetary awards to patient advocacy organizations committed to developing unique and collaborative programs that will make meaningful contributions to the rare disease community by increasing awareness, diagnosis, education or fostering development of future patient advocates. The program is currently focused on the Duchenne muscular dystrophy (Duchenne) community.

PTC Therapeutics respects and values the important services provided by patient advocacy organizations for individuals and families affected by rare disorders. In recognizing this, PTC encourages all Duchenne patient advocacy organizations, regardless of location, to submit proposals for programs that will address any unmet need for the Duchenne community. Proposals to collaborate with other organizations to meet these needs are also welcome. These competitive one-year awards are established to support programs that will benefit the Duchenne community through:

  • Improving the diagnosis and treatment of patients
  • Improving quality of life for those living with Duchenne and their families
  • Educating the public and healthcare professionals and raising awareness of Duchenne
  • Identifying and fostering the next generation of Duchenne patient advocates

One-year awards will be given to programs that demonstrate the most innovation, vision and empowerment for the community and recipients will be identified through a competitive submission process. Proposals will be reviewed by an external Review Committee from around the world who will not see identifying information contained in proposals except country of origin. The members of the Review Committee were selected for their understanding of the rare disease community coupled with skills that include patient advocacy, philanthropy, communications, and knowledge of science.

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