Skip to main content

Meet James Wood: 2020 Duchenne United Gaming (DUG) Panelist and Gamer

October 1, 2020
  1. Meet James Wood: 2020 Duchenne United Gaming (DUG) Panelist and Gamer

    “(W)e are in no way diminished as humans and should be treated fully equally.” – James Wood, DUG Panelist and Gamer Duchenne United Gaming (DUG) is a Duchenne muscular dystrophy disease awareness initiative brought to you by PTC Therapeutics and CureDuchenne. The October 10 DUG Champion Competition will feature James Wood and four other gamers…

  2. Meet Wil Cook: 2020 Duchenne United Gaming (DUG) Panelist and Gamer

    “For me, it is important to not overthink things and just be thankful to be alive.” – Wil Cook, DUG Panelist and Gamer Duchenne United Gaming (DUG) is a Duchenne muscular dystrophy disease awareness initiative brought to you by PTC Therapeutics and CureDuchenne. The October 10 DUG Champion Competition will feature Wil Cook and four other gamers…

  3. STRIVE Awards Sponsor Hope Online

    “For over 30 years, it has been ADM’s mission to improve the quality of life for the people with neuromuscular diseases in Argentina. After winning this year’s STRIVE awards, we are overjoyed to be able to develop an online community which will continue to support and address the needs of the 1,600 Duchenne patients in…

  4. Education for Duchenne Caregivers in Hungary

    “For many parents of Duchenne patients in Hungary, these events provide a trusted environment where they can share their concerns, and experience a few well-needed hours of respite as their child takes part in many fun activities with their peers.” – Dr Gabriella Oberrecht, Chairperson of the Board, Healing Goodwill Foundation – Duchenne Hungary Receiving…

  5. Counseling Duchenne Patients in Russia

    “With so many individuals providing care to their child alone, without professional help, the ‘Not Alone’ initiative, made possible by the STRIVE program, will provide an invaluable support system to families impacted by Duchenne muscular dystrophy.” – Margarita Urmancheeva, President, GAOORDI Due to a lack of funding, only a few specialist care facilities for Duchenne…

  6. PTC Grant Funds Life Science Immersion Program

    “The next young generation can play a pivotal role in supporting the rare disease community. With this year’s STRIVE Award, we can equip students with the essential tools and knowledge needed so they can be young Duchenne ambassadors in their community.” – Richard Horgan, Founder and President, Cure Rare Disease The rarity of diseases such…

  7. Peer Navigators Help Duchenne Families Cope

    “It’s a difficult journey and everyone deals with it differently.” – Jessica Rothe, Duchenne muscular dystrophy parent and PTC peer navigator For Jessica Rothe, adjusting to her son Nathan’s Duchenne muscular dystrophy (DMD) diagnosis wasn’t easy. Her extended family had a really difficult time accepting the diagnosis. The denial resulted in isolation for Jessica, her…

  8. PTC Celebrates Rare Disease Day 2020

    This February, PTC celebrated Rare Disease Day on a global scale, with employee participation in disease and patient awareness, as well as displays of support for the rare disease community we serve. These images demonstrate our ongoing commitment to bringing more of life’s precious moments to patients with rare diseases and their loved ones. From…

  9. PTC Awards Grants for Global Duchenne Muscular Dystrophy Research

    In 2019, we launched PRIORITY, a global innovative research funding program to support pioneering clinical research initiatives that address the unmet medical needs of patients with the rare genetic disorder Duchenne muscular dystrophy. The goal is to advance the diagnosis and care of patients and support unique research programs that are focused on increasing the number…