What is the STRIVE Awards Program?
STRIVE stands for Strategies to Realize Innovation, Vision and Empowerment.
The PTC STRIVE Awards is a program created to encourage and reward innovation to patient advocacy organizations through the support of unique and inventive programs that can address the unmet needs of people living with rare diseases.
Which disease communities are eligible to apply for these awards?
Currently, the STRIVE Awards are available to patient advocacy organizations that serve the Duchenne muscular dystrophy and cystic fibrosis communities.
How do I know if my organization can apply for a STRIVE award?
If you work with a patient advocacy organization that serves the Duchenne muscular dystrophy or cystic fibrosis community, you are welcome to submit your application.
The only requirement for these organizations is that they must be registered by or have some type of official recognition from the government of the country where they operate. The organization must be legally-incorporated, non-governmental, and fully accredited as a non-profit organization, based upon the local government standards or stipulations. The local chapters or affiliates of national organizations will not be eligible for STRIVE Awards.
If my organization works with the Duchenne muscular dystrophy (DMD) and/or cystic fibrosis (CF) communities, but also serves other diseases, can we apply for a STRIVE award?
Yes, the STRIVE Awards program welcomes any organization that benefits the DMD and/or CF communities to submit an application, regardless of the work it may also do to benefit any other diseases.
We’re committed to helping groups who are interested in developing programs to educate, support and serve the DMD or CF communities.
What type of programs will be considered for a STRIVE Awards?
STRIVE (Strategies to Realize Innovation, Vision and Empowerment) Awards will support innovative strategies to help and empower the patient community.
The program will not fund an organization’s ongoing daily activities including conferences and fundraising events.
How do we apply?
Detailed information about the submission process as well as an application cover sheet is available here . Key dates to consider are:
- Applications will be accepted in May 2017
- STRIVE CF Awards will be announced in October 2017
Duchenne Muscular Dystrophy-
- March 1 to May 31, 2017: applications will be accepted
- September 7, 2016: STRIVE DMD Awards will be announced
Is the application available in languages other than English?
The application process information and coversheet are currently available only in English. However, because we are interested in working with international DMD and CF communities, applications may be submitted in other languages.
If your organization needs to submit the application in a language other than English, we will provide you with translation services at no cost.
However, it will be the responsibility of each organization to translate further grant-related documents into English at their own expense. These include a written agreement with PTC Therapeutics that defines the basic conditions for project financing, including the requirement to provide an interim report/status update at the midpoint of the grant cycle and a final report at the end of a cycle.
How many applications can one organization submit?
We ask each organization to submit only one proposal per awards cycle.
For how long will my organization receive funding from a STRIVE Award?
Recipients will receive funding to cover the year-long program recognized through the STRIVE Awards.
How will the judges evaluate the proposals?
The review committee assesses each application based on the merits of each program. With the exception of the country of origin, details about the organization are removed from the submission form to ensure an unbiased evaluation.
The judges will consider the program based on the unmet need it will address and the innovative approach proposed by the organization.
Who is the review committee?
The review committee was chosen based on the members’ experience in various fields including patient advocacy and rare diseases.
If my organization receives a STRIVE award, what will be required of us?
If your organization is recognized with a STRIVE award, you will be asked to enter into an agreement with PTC Therapeutics, which outlines the conditions for financing your program. Because we would like to track your progress, the requirements include a written report and status update 6 months into your project, as well as a final report at completion. These reports will include details of how funds were allocated.
Additionally, we will share this information with the DMD and CF communities so they can see the difference these projects make in the lives of the patients.
How many awards will PTC Therapeutics be presenting this year? How much funding will an organization receive from a STRIVE Award?
The awards will be up to $30,000 (USD).
We will determine the number of awards later in the process.
My organization has not yet received non-profit status from our government. Are we still eligible to apply for a STRIVE award?
Applications are accepted only from accredited nonprofit organizations that are able to show a document of proof by the time of the submission.
Will organizations that are already receiving funding from PTC Therapeutics or have received funding in the past still be eligible to submit a proposal for the PTC STRIVE Awards Program?
Yes, organizations are welcome to submit proposals for new projects to support the development of programs for the DMD and CF communities.
If my organization receives and accepts an award from PTC Therapeutics one year, can we apply the following year?
An organization who has received a STRIVE Awards recognition cannot submit a new application until the completion of their program.
If your organization received a STRIVE award in 2015, we welcome you to submit a new application in 2017.
Will PTC Therapeutics consider ongoing or completed projects?
The review committee will only evaluate and fund projects that are new or have not yet started.
How will organizations be notified?
We will inform applicants by sending an email confirmation when their proposal is received. We will also contact each group individually to notify them of the outcome of their submission. We will then publicly announce the recipients on:
- STRIVE CF Awards: May, 2017
- STRIVE DMD Awards: September 7, 2017
If my organization is not familiar with grant writing, is PTC Therapeutics able to provide assistance?
Employees of PTC cannot assist an organization in developing its proposal for the PTC STRIVE Awards. Realizing that some organizations may have limited experience in grant writing, PTC provides links to resources available to assist with the creation and development of an appropriate proposal in the submission process document.
Who can I contact if I have a question during the application process?
If you have any questions or concerns during the application process, please feel free to send an email to STRIVE@ptcbio.com and someone from PTC Therapeutics will follow up with you. .
What if my organization does not win a STRIVE award?
If your organization is not chosen to receive a STRIVE award you will still be notified of the outcome via email.
We would welcome a new proposal from your organization during the following awards cycle.
Where can I find examples of programs previously recognized with a STRIVE award?
You can read about past recipients’ programs in the STRIVE for DMD section of this website. We will continue to update this information as the programs progress.
What if my organization missed the submission deadline?
In order for all organizations to be judged fairly, all proposals must be submitted by the deadline indicated. Exceptions will not be made.