Hôpital Universitaire des Enfants Reine Fabiola
Brussels

Principal Investigator:
George Casimir, MD

Study Coordinator:
Bernard Wenderickx
Phone: 32-(0) 2-4773288
Email: bernard.wenderickx@huderf.be

Hôpital Erasme
Brussels

Principal Investigator: Christiane Knoop, MD

Study Coordinator:
Gheorghita Amand
Phone: 32-(0) 2-5553985
E-mail: ghamand@ulb.ac.be

University Hospital Brussels
Brussels

Principal Investigator:
Anne Malfroot, MD

Study Coordinator:
Christel Van den Brande
Phone: 32-(0) 2-4774187
E-mail: christel.vandenbrande@uzbrussel.be

University Hospital Leuven
Leuven

Principal Investigator:
Christiane De Boeck, MD

Study Coordinator:
Els Aertgeerts
Phone: 32-(0) 16-343831
E-mail: els.aertgeerts@uzleuven.be

St. Michael’s Hospital
Toronto

Hôpital Necker - Enfants Malades
Paris

Principal Investigator:
Isabelle Gaudelus Sermet, MD

Contact:
Agnès Mogenet    
Phone: 33-(0) 144-494758    
Email: agnes.mogenet@aphp.fr

Hôpital Cochin
Paris

Principal Investigator:
Isabelle Fajac, MD

Contact:
Dominique Hubert    
Phone: 33-(0) 158-412378    
Email: dominique.hubert@cch.aphp.fr

Université de Rennes
Rennes

Hôpital des Enfants
Toulouse

Principal Investigator:
François Bremont, MD

Contact:
Françoise Auriol  
Phone: 33-567771382   
Email: uip.cp@chu-toulouse.fr  

Klinikum der Universität Köln
Köln

Medizinische Hochschule Hannover
Hannover

Hadassah Medical Center, Hebrew University Hospital
Jerusalem


Principal Investigator:
Eitan Kerem, MD

Study Coordinator:
Thea Pugatsch
Phone: 972-(0) 2-5844702
Email: pthea@hadassah.org.il

Azienda Ospedaliera di Verona
Verona

Principal Investigator:
Paola Melotti, MD

Study Coordinator:
Ilaria Meneghelli
Phone: 39-(0) 45-8123740
Email: imeneghelli@hotmail.it

Università La Sapienza Policlinico Umberto I
Rome

Principal Investigator:
Serena Quattrucci, MD  

Study Coordinator:
Troiani Patrizia
Phone: 39-06-49979264
Email:patrizia.troiani@fastweb.it  

Longziekten Universitair Medisch (PEDIATRIC)
Utrecht

Principal Investigator:
Kors van der Ent, MD, PhD

Study Coordinator:
Valesca van Maanen    
Phone: 31-(0) 88-7554757    
Email: v.vanmaanen@umcutrecht.nl

Longziekten Universitair Medisch (ADULT)
Utrecht

Principal Investigator:
Inez Bronsveld, MD, PhD

Study Coordinator:
Irene Straathof 
Phone: 31-(0) 88-7557274   

Corporació Sanitaria Parc Taulí
Barcelona

Hospital La Paz-Pediatrics
Madrid

Karolinska Univ. Hospital Huddinge
Stockholm

Principal Investigator:
Lena Hjelte, MD

Study Coordinator:
Vivi Adermark 
Phone: 46-8-58584842
Email:vivi-ann.adermark@karolinska.se

Royal Liverpool Children's Hospital (Alder Hey)
Liverpool

Principal Investigator:
Kevin Southern, MD

Study Coordinator:
Christine Patterson
Phone: 44-0151-252 5570 ext 4755
Email:christine.patterson@alderhey.nhs.uk

Belfast City Hospital
Belfast

University of Alabama
Birmingham, Alabama

Principal Investigator:
Steve Rowe, MD

Study Coordinator:
Heather Young
Phone: (205) 939-9568
Email: hyoung@peds.uab.edu    

Miller Children's Hospital Long Beach
Long Branch, California  

Principal Investigator:
Terry Chin, MD

Study Coordinator:
Candice Evans
Phone: (562) 492-6383
Email:cevans@memorialcare.org    

Stanford University Children’s Hospital
Palo Alto, California

Principal Investigator:
Richard Moss, MD

Study Coordinator:
Colleen Dunn
Phone: (650) 736-0388
Email: cedunn@stanford.edu    

Rady Children’s Hospital
San Diego, California

Principal Investigator:
Mark Pian, MD

Study Coordinator:
Bobbi Munden
Phone: (619) 543-7963
Email: bmunden@ucsd.edu

The Children’s Hospital
Aurora, Colorado

Principal Investigator:
Frank Accurso, MD

Study Coordinator:
Churee Pardee
Phone: (720) 777-6162
Email:Pardee.Chureeporn@tchden.org

University of Miami
Miami, Florida

Miami Children's Hospital
Miami, Florida

Emory University Cystic Fibrosis Center
Atlanta, Georgia

Principal Investigator:
Michael Schechter, MD

Study Coordinator:
Eric Hunter
Phone: (404) 712-3930
Email: eahunte@emory.edu

Children’s Memorial Hospital
Chicago, Illinois

Principal Investigator:
Susanna McColley, MD

Study Coordinator:
Catherine Powers
Phone: (773) 880-8223
Email: cpowers@childrensmemorial.org  

University of Iowa
Iowa City, Iowa

John Hopkins Children’s Center
Baltimore, Maryland

Principal Investigator:
Pamela Zeitlin, MD

Study Coordinator:
Erin Felling   
Phone: (410) 614-1409   
Email: efellin1@jhmi.edu

Children’s Hospital Boston
Boston, Massachusetts

Washington University
St. Louis, Missouri

Principal Investigator:
Daniel Rosenbluth, MD

Study Coordinator:
Patty Burks
Phone: (314) 454-5175
Email: burks_p@kids.wustl.edu

Beth Israel Medical Center
New York, NY

New York Medical College
Valhalla, New York

University of North Carolina
Chapel Hill, North Carolina

Principal Investigator:
George Retsch-Bogart, MD

Study Coordinator:
Caroline O'Connor
Phone: (919) 843-7121
Email: coconnor@med.unc.edu

Rainbow Babies & Children's Hospital
Cleveland, Ohio

Principal Investigator:
Michael Konstan, MD

Study Coordinator:
Bobbi Ksenich
Phone: (216) 844-5733
Email:roberta.ksenich@uhhospitals.org

Childrens Hospital of Pittsburgh
Pittsburgh, Pennsylvania

Principal Investigator:
Joseph Pilewski, MD

Study Coordinator:
Elizabeth Hartigan
Phone: (877) 296-9026
Email: elizabeth.hartigan@chp.edu

Alamo Clinical Research
San Antonio, Texas

University of Texas
Tyler, Texas

University of Washington
Seattle, Washington

Principal Investigator:
Moira L. Aitken, MD

Study Coordinator:
Alycia Wolfstone    
Phone: (206) 685-3995    
Email:alan.genatossio@seattlechildrens.org