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A FEW IMPORTANT RESOURCES FOR PATIENTS AND FAMILIES:
Action Duchenne
www.actionduchenne.org
Association Francaise Contre Les Myopathies (AFM)
www.afm-france.org
Canadian Organization for Rare Disorders
www.raredisorders.ca
Cystic Fibrosis Foundation (CFF)
www.cff.org
Duchenne Parent Project Onlus
www.parentproject.org
European Organization for Rare Disorders (EURORDIS)
www.eurordis.org
FDA Clinical Trials Website
www.clinicaltrials.gov
Gene Tests: NIH-Sponsored Website
www.genetests.org
Muscular Dystrophy Association
www.mdausa.org
National Organization for Rare Disorders (NORD)
www.rarediseases.org
Parent Project Muscular Dystrophy (PPMD)
www.parentprojectmd.org
TREAT-NMD Neuromuscular Network
(Translational Research in Europe for the Assessment and
Treatment of Neuromuscular Disease)
www.treat-nmd.eu
Vaincre La Mucoviscidose
www.vaincrelamuco.org
* Please note that external web site links provided in this document are outside of PTC Therapeutics' control, and we assume no responsibility for the information they may contain. This document is provided for educational purposes only and is not intended to replace the medical advice of a physician or other qualified health care provider.
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